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Their study showed that only 17% of individuals with spina bifida were fully employed and 14% were part-time employed.Fourteen percent of the adults were still in training while 6% could not find a paying job and volunteered as unwaged workers.
Having kept this purpose in mind, I have chosen the title "The Adult Consequences of Spina Bifida" with the intent to review the outcome studies documenting our successes, and unfortunately in some cases our failures.
By looking at these outcome studies, it is hoped that we can recognize areas of potential improvement in the treatment of children so they may have more fruitful lives as adults.
The major question is "how often are adults with spina bifida leading successful and productive lives?
" There are several studies addressing the quality of life, level of independence and self-determination. Using the Objective Checklist – ACL Autonomy scale, the Days of Coping Checklist – WCC Problem Focused Coping Scale and the Denver Self Care Aging Journal, Monsen  showed that adolescents and young adults with spina bifida are less independent than a matched comparison sample of adolescents and adults without spina bifida.
I am honored to be the Casey Holter Memorial lecturer.
All of us in the Society miss John Holter very much!
The average IQ for an individual with spina bifida is 80, with 10% of this population having an IQ less than 70 .
Many have difficulties getting the level of education necessary for a highly technical job.
A few intervention studies (18, 19) have shown some promise in improving the independence and self care of these young adults through mentoring, coaching and peer support groups.
One measure of success and independence would be the ability to seek and gain employment [3, 26].